Monday, December 15, 2008
This is going to be AWESOME! I have a small army of friends working on this....it's going to be BIG, with runs/walks, sponsored breakfast & lunch, vendors, activities---perfect for the whole family!
For Registration & Information or to sponsor, check out the site at:
Tuesday, October 28, 2008
Monday, October 20, 2008
*The hardest decision a parent would have to make is to have to make a decision. If there isn't a possibility of separation, there isn't a choice to make.
*An average child with congestive heart disease would live to late childhood, early teens. The shared heart these girls have is considered below average.
*One more test is needed which would measure the pressure in Emma's heart. If it's too high, then the possibility of separation would be taken off the table completely.
*They each have the anatomy to support a transplant heart. Artificial hearts work as an attachment to a heart--not an option.
*It's a small window in which to perform the separation. Too much longer, separation cannot be considered.
*With several preliminary surgeries, separation and recovery, the time frame would be 6-9 months minimum. How do we then manage family life, work, school for the big kids, etc.? Do we split up the family or not, in order to keep stability for work and the big kids?
*The doctors never said they should or should not separate. They said, "We can support you through this process. But the decision is up to you."
Sunday, October 19, 2008
Friday, September 19, 2008
Guess who's TWO?
Happy Birthday Emma & Taylor!
Discovery Health Program:
"Two sisters, One Heart"
Oct. 22nd, 8 and 11pm
(Comcast channel #220)
Check listings at www.discoveryhealth.com for additional air times.
In October, the girls will begin the process of testing to determine the possibility of separation.
Monday, September 8, 2008
October 22 at 8pm and 11pm eastern time
Discovery Health Channel
I was hoping to book Kate Hudson for a stunt double, she wasn't abailable. Sorry guys, you get what you get, and you don't throw a fit! We hope you enjoy it, and get a few laughs and cries, as we have, putting it together.