Monday, October 20, 2008
*The hardest decision a parent would have to make is to have to make a decision. If there isn't a possibility of separation, there isn't a choice to make.
*An average child with congestive heart disease would live to late childhood, early teens. The shared heart these girls have is considered below average.
*One more test is needed which would measure the pressure in Emma's heart. If it's too high, then the possibility of separation would be taken off the table completely.
*They each have the anatomy to support a transplant heart. Artificial hearts work as an attachment to a heart--not an option.
*It's a small window in which to perform the separation. Too much longer, separation cannot be considered.
*With several preliminary surgeries, separation and recovery, the time frame would be 6-9 months minimum. How do we then manage family life, work, school for the big kids, etc.? Do we split up the family or not, in order to keep stability for work and the big kids?
*The doctors never said they should or should not separate. They said, "We can support you through this process. But the decision is up to you."